A support group for those who care for or live with a person with special needs: genetic, acquired, physical, cognitive, psychiatric, dementia, ADHD, Autism, etc.

Members: 37
Latest Activity: Aug 21, 2016

Some cartoons to lighten the load a little.

Discussion Forum

Anyone there?

Started by Amy B Feb 18, 2015. 0 Replies

What to do when there's no TIME?

Started by Taran Meyer Oct 29, 2010. 0 Replies

So who's your special needs guy/girl?

Started by LeoPardus. Last reply by Taran Meyer Oct 21, 2010. 56 Replies

Comment Wall


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Comment by Rosemary LYNDALL WEMM on August 6, 2009 at 10:16am
Hi Sue B.

Welcome to the list.

It sounds like your grandchild is well endowed with friendly relatives. That is the most important thing.
If you want to help I suggest you aks the parents what kind of help they would most appreciate. Begin by asking them what they find are the biggest problems.

I suspect the help which will be most appreciated will be very practical things, like looking after the child, and/or their other children so that they can take a break or get some much needed sleep. Or providing ready cooked meals every now and again.

If the couple have other children do things with and for them. Sadly, neuro-typical children in families of this kind are all too often neglected or made to feel less "special" and important. This has life-long repercussions which teachers and mental health professionals (like me) have to address. This is one of the hidden tragedies which is frequently ignored by those who work with Downs children and their parents.
Comment by Sue B on August 5, 2009 at 6:47pm
Hey all,
I'm a new Grandma as of Aug 2nd and my beautiful little granddaughter was born with downs, but I truly believe she's as fine as they get and will be a joy to our family. (fortunately very healthy with only a couple markers and an excellent heart)

Any advice out there about how I can help out? I don't want to be pushy and this baby has 4 grandmas (plus numerous Aunts, great Aunts and cousins) Help from anyone who has had to deal with this would be great, Thanks.
Comment by Rosemary LYNDALL WEMM on July 6, 2009 at 7:34pm
Welcome, Nathan. I am sure your insights will be very valuable here.
Comment by Nathan on July 6, 2009 at 2:34pm
Hey group family operates long term care facilities for individuals with severe and profound mental retardation...we care for 96 individuals in NE Ohio. Nice to be here.

Comment by Rosemary LYNDALL WEMM on June 2, 2009 at 5:40pm
I regret that I am unable to supply any competition in regards to corsets these days. Lucky Angie!
Comment by Angie Jackson on June 2, 2009 at 4:53pm
Thanks Brad. "MILF" is the motto
Comment by LeoPardus on June 2, 2009 at 3:43pm
Did the ABA session at least seem good on your first visit?

And I'll second the compliment on Angie's corset and add, "Whoa! Hummina!"
Comment by Joseph on June 1, 2009 at 5:13pm
Good Luck! ABA is tough, but it is well worth it in the long run.
Comment by Angie Jackson on June 1, 2009 at 3:48pm
Best of luck :)
Comment by Rosemary LYNDALL WEMM on June 1, 2009 at 3:08pm
Good luck! Please let us know how it goes.

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