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Cancer

If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 22
Latest Activity: Apr 13

Cancer

Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Sean Parker to Donate $250,000,000 to Fight Cancer

Started by John Jubinsky. Last reply by Michael Penn Apr 13. 1 Reply

Billionaire Sean Parker who was the first president of Facebook and a co-founder of Napster will donate $250,000,000 to fund immunotherapy research to fight cancer. This type of therapy fights cancer…Continue

New Hope for Hard-to-Treat Cancers

Started by Qiana-Maieev. Last reply by Ruth Anthony-Gardner Apr 7. 2 Replies

Ancient Algae Offer New Hope for Hard-to-Treat CancersPosted: 06 Apr 2016 01:57 PM PDTIn one of the oldest life…Continue

Johns Hopkins Receives $125,000,000 to Fight Cancer

Started by John Jubinsky. Last reply by Donald L. Engel Mar 31. 2 Replies

Johns Hopkins has received 125 million dollars to develop treatments that fight cancer by having the patient’s own immune system attack it. Per the article:Johns Hopkins has announced plans for the…Continue

A Personal Cancer Blog

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Comment by Daniel W on December 23, 2015 at 2:56am
Well, here is follow upmon the endoscopy - no awakening gremlins. So that's good. The referral also resulted in some helpful advice, so that was worth doing. Peace and good feelings everyone!
Comment by Daniel W on December 12, 2015 at 11:37am

After long absence on here, here is my cancer update.  Just putting it here because I don't have anywhere else to put it.

My recent scan showed a vague mass in the inside of the stomach - in my case, what remains of the stomach since most was removed 3 years ago.  The radiologist reported that this was same location of a mass that they failed to report at the scan 6 months ago, but different appearence.  It's possible this is just retained food, or even a pill since I have some large, hard pills in my regimen.  They recommended wait 6 months and repeat the scan.  I responded by stating I wanted an endoscopy- put a fiberoptic probe into the stomach to see  if there is something there or not.  The patient has to be their own advocate.  They scheduled it, in 2 weeks.  I can ask if this is humane - tell someone they might have metastatic cancer, then they need to wait two weeks to maybe know or not - but that's better than waiting 6 months.

I also decided to go on my own to OHSU, which happens to be a sarcoma center of excellence, and where my treatment was discovered and developed.  They seen hundreds of patients with this rare disease.   My health plan left me hanging 2 months to print out my records to send to OHSU - which just takes printing them off from the computer - and the OHSU said they can do that electronically after all, with my verbal approval.  So, I have an appointment there in a week.  I have to self-pay, but it's only about $500, which in the scheme of things I can manage and very fortunate that I can. 

So that's the update.  Unknowns, frusttration with the health plan, their maddening and inhumane slowness, and the lession that we have to be our own advocates even when we feel tired, stressed, and worn down.

I hope everyone is well and stays that way for the long term.

Even if my cancer is now metastatic - which it may not be - or might be - there are more treatments - which also have more toxicities.  I'm very fortunate to have the where-with-all to have treatment, but kind of down at the same time.

Comment by Plinius on June 20, 2015 at 1:26am

Many happy returns, Patricia!

Comment by Barbara Livingston on June 19, 2015 at 10:39pm

An "official" sigh of relief, eh? Happy for you. 

Comment by Daniel W on June 19, 2015 at 8:42pm
Yay Patricia!
Comment by Joan Denoo on June 19, 2015 at 7:17pm

Patricia, that is good news, indeed. Celebration time. I will have a glass of prune juice in a champagne glass in your honor! 

Comment by Dr. Terence Meaden on June 19, 2015 at 6:09pm

We are so happy for you Patricia. 

Comment by Joan Denoo on June 14, 2015 at 10:10pm

Good for you, Mike, passing on poison seems like a good choice. 

Comment by Michael Penn on June 14, 2015 at 9:38pm

Joan, it isn't difficult to quit drinking when one realizes that their body no longer processes alcohol. Two drinks and I do not feel well and my body never gets the "buzz" or alcohol "high" any longer. Therefore, there is no reason to drink. I could force myself to drink but doing so would be a death sentence. I'll pass.

Comment by Joan Denoo on June 14, 2015 at 7:34pm

"Give it to god!" 

What an inadequate response! I see no evidence of god and if there is one he/she/it works very hard to conceal him/her/it -self. For those who give "it" to god and feel better, I am glad. It appears like giving thanks to someone who one thinks gives a gift but didn't. Except what if there is no god who gives gifts, answers prayers, protects one from evil, gives guidance when in doubt, then itExcept, what if there is no god who doesn't give gifts, answer prayers, protect one from evil, give guidance when under stress? 

Except what if there is no god who gives gifts, answers prayers, protects one from evil, gives guidance when in doubt, then it is an empty gesture. 

A gesture with meaning is facing reality as it is, exploring for answers that matter, developing a plan to face reality with courage and get on with life. 

Oh well, what else is new?

How are you doing, Patricia? Get over your ordeal with your humor still intact? 

 

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