If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 22
Latest Activity: Oct 21


Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Metastasis Visualized

Started by Ruth Anthony-Gardner. Last reply by Daniel Wachenheim Jun 27. 3 Replies

This video makes it easier to grasp how metastasis occurs.Continue

Tags: metastasis, cancer spread

Sean Parker to Donate $250,000,000 to Fight Cancer

Started by John Jubinsky. Last reply by Michael Penn Apr 13. 1 Reply

Billionaire Sean Parker who was the first president of Facebook and a co-founder of Napster will donate $250,000,000 to fund immunotherapy research to fight cancer. This type of therapy fights cancer…Continue

New Hope for Hard-to-Treat Cancers

Started by Qiana-Maieev. Last reply by Ruth Anthony-Gardner Apr 7. 2 Replies

Ancient Algae Offer New Hope for Hard-to-Treat CancersPosted: 06 Apr 2016 01:57 PM PDTIn one of the oldest life…Continue

Comment Wall


You need to be a member of Cancer to add comments!

Comment by Joan Denoo on December 23, 2015 at 5:25am

Daniel, I just now read your Dec. 12 post. I am so sorry I missed it and found it only by accident. Thankfully, your self-advocacy worked and you know there are "no awakening gremlins". I am sorry I didn't find your message on the day you sent it.

Your plans to go to OHSU makes good sense. With well trained doctors and staff, modern equipment and treatments, and you being a good advocate for yourself, creates a good team working with you.   

So! You are going to the Reason Rally. and Washington D.C.! That will be a treat. Hopefully, A/ will have a get-together.

I am lazy. I spend many hours just doing what pleases me, and that includes naps. It isn't too much longer until your retirement and you can do what you want.


Comment by Plinius on December 23, 2015 at 5:20am

Good news Daniel! Congrats! 

Comment by Daniel Wachenheim on December 23, 2015 at 2:56am
Well, here is follow upmon the endoscopy - no awakening gremlins. So that's good. The referral also resulted in some helpful advice, so that was worth doing. Peace and good feelings everyone!
Comment by Daniel Wachenheim on December 12, 2015 at 11:37am

After long absence on here, here is my cancer update.  Just putting it here because I don't have anywhere else to put it.

My recent scan showed a vague mass in the inside of the stomach - in my case, what remains of the stomach since most was removed 3 years ago.  The radiologist reported that this was same location of a mass that they failed to report at the scan 6 months ago, but different appearence.  It's possible this is just retained food, or even a pill since I have some large, hard pills in my regimen.  They recommended wait 6 months and repeat the scan.  I responded by stating I wanted an endoscopy- put a fiberoptic probe into the stomach to see  if there is something there or not.  The patient has to be their own advocate.  They scheduled it, in 2 weeks.  I can ask if this is humane - tell someone they might have metastatic cancer, then they need to wait two weeks to maybe know or not - but that's better than waiting 6 months.

I also decided to go on my own to OHSU, which happens to be a sarcoma center of excellence, and where my treatment was discovered and developed.  They seen hundreds of patients with this rare disease.   My health plan left me hanging 2 months to print out my records to send to OHSU - which just takes printing them off from the computer - and the OHSU said they can do that electronically after all, with my verbal approval.  So, I have an appointment there in a week.  I have to self-pay, but it's only about $500, which in the scheme of things I can manage and very fortunate that I can. 

So that's the update.  Unknowns, frusttration with the health plan, their maddening and inhumane slowness, and the lession that we have to be our own advocates even when we feel tired, stressed, and worn down.

I hope everyone is well and stays that way for the long term.

Even if my cancer is now metastatic - which it may not be - or might be - there are more treatments - which also have more toxicities.  I'm very fortunate to have the where-with-all to have treatment, but kind of down at the same time.

Comment by Plinius on June 20, 2015 at 1:26am

Many happy returns, Patricia!

Comment by Barbara Livingston on June 19, 2015 at 10:39pm

An "official" sigh of relief, eh? Happy for you. 

Comment by Daniel Wachenheim on June 19, 2015 at 8:42pm
Yay Patricia!
Comment by Joan Denoo on June 19, 2015 at 7:17pm

Patricia, that is good news, indeed. Celebration time. I will have a glass of prune juice in a champagne glass in your honor! 

Comment by Dr. Terence Meaden on June 19, 2015 at 6:09pm

We are so happy for you Patricia. 

Comment by Joan Denoo on June 14, 2015 at 10:10pm

Good for you, Mike, passing on poison seems like a good choice. 


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