If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 21
Latest Activity: Jan 5


Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Metastasis Visualized

Started by Ruth Anthony-Gardner. Last reply by Daniel W Jun 27, 2016. 3 Replies

This video makes it easier to grasp how metastasis occurs.Continue

Tags: metastasis, cancer spread

Sean Parker to Donate $250,000,000 to Fight Cancer

Started by John Jubinsky. Last reply by Michael Penn Apr 13, 2016. 1 Reply

Billionaire Sean Parker who was the first president of Facebook and a co-founder of Napster will donate $250,000,000 to fund immunotherapy research to fight cancer. This type of therapy fights cancer…Continue

New Hope for Hard-to-Treat Cancers

Started by Qiana-Maieev. Last reply by Ruth Anthony-Gardner Apr 7, 2016. 2 Replies

Ancient Algae Offer New Hope for Hard-to-Treat CancersPosted: 06 Apr 2016 01:57 PM PDTIn one of the oldest life…Continue

Comment Wall


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Comment by Daniel W on June 14, 2015 at 6:35pm
Mike, I sincerely hope your liver heals for you and you get a renewed leade on life.

Joan, it's strange. I was more embarassed than anything else. The pain was so bad I had to leave a patient in a room, and the staff had to cancel others. And I felt bad that I put Ning into a panic. I think I'm kind of numb about myself - resigned to whichever way it goes. I didn't like the experience, but was more concerned about Ning.

What caused the episode? I still don't know. There are lots of bizarre muscle cramps in my legs, feet, hands, arms. Even in the jaw and neck. I attribute those to the adjuvant therapy. Im speculating, but maybe this was a muscle cramp in the supportive muscles of my flank. The cramps are exquisitely painful, but they pass. I look at it as, they mean I'm absorbing the medication, and it's in my system, so that's good. Maybe this was just another muscle cramp. If it happens again, I wont worry about it,

Joan, I will always be grateful that we were able to share our cancer journeys.

My workload is too heavy, but only 8.5 months to go.
Comment by Joan Denoo on June 14, 2015 at 5:54pm

Barbara, thank you for your expression of appreciation of the endurance of cancer survivors in this group. We are a hearty lot! 

There is something about the word "cancer" that is rightly spelled "vulnerable". I felt I was invulnerable to the challenges of life only to learn otherwise. The cancer required endurance; the fall, the broken arm and ribs and blocked bowel, although over very quickly, has surely made a coward of me. I like my cane by my side, even when I don't need it. 

I must add that life has more sparkle now! Each morning is a real pleasure; each night a happy drift into sleep and rest. I even enjoy people more; kind of like treasures that pop into and out of my days always bringing smiles and joy. 

Comment by Joan Denoo on June 14, 2015 at 5:40pm

Daniel, my heart flipped when I read of your pain ... the memory remains fresh in my mind of your previous episode. How relieved you must have felt upon examination and finding nothing! That late winter day in 2013, when you were first diagnosed, and then I a week later, started us on a road we didn't plan. The good news is, we met each day and each challenge, cheering each other along the way. 

I celebrate your negative report!

Now, what caused the pain? Are you fully recovered from it? What can you do to prevent it from happening again? Is your workload too heavy? 

Maybe it was just your body telling you to slow down and enjoy your new kitchen!

Take good care, my dear friend

Comment by Michael Penn on June 14, 2015 at 9:50am

Barbara, I see what you are saying but if an alcoholic drinks most of his life we can assume alcohol is the cause. Treatment is pretty much the same. It just depends on whether you have 25% good liver or not. If so you can heal in 3 years. If not, you might live another 2 years or less. The bottom line is no more alcohol but I agree it's hard to drink if your liver is not processing it. That's why I quit drinking. I get nothing from it anymore, not even a buzz.

Comment by Barbara Livingston on June 14, 2015 at 9:39am

Daniel, glad it turned out to be nothing, or at least not visible. Sorry you had to endure the scare and physical pain. 

Michael, maybe finding the cause will help them decide on treatment?

Comment by Michael Penn on June 14, 2015 at 9:20am

That would be a scare, Daniel, but at least it was nothing to worry about in the end. In my case the CT scan shows me all that I feared was true, but the reader does not think so. I'm not a reader but all of my peritoneal space was occupied. Now I see a liver specialist August 19th and the big deal seems to be is my condition alcohol related or not. WTF? I've been a heavy drinker most of my life. What do they think it is? They really are in a hurry aren't they? I'm not going to play games over whether my grandpa inherited a bad gene from his uncle Charlie. That won't work with me.

Comment by Barbara Livingston on June 14, 2015 at 9:17am

My 'bouncy, bubbly' neighbor has breast cancer and when she told me six months ago she was diagnosed I told her I would do whatever I could to support her.  She then told me she had "given it to God" and wasn't going to worry anymore. There wasn't much else I could say, and we continued on. I do know in the beginning she was very afraid and that is what we discussed most.  

Ironically, last month I got a taste of what she is going through. In early May, my GYN doctor discovered dysplasia during my annual. She was concerned, scheduled surgery, and of course I came home and Googled it. The surgery determined that dysplasia was "severe" and my doctor confirmed what I learned on the internet; it could go away completely or since there was high pre-cancerous activity it could come back or actually become  cancer. My doctor said she would follow closely with three month checkups. Obviously I've been pre-occupied this past month. 

I discovered something;  dysplasia is common in women around age 70, and in 50% of those women it is closely related to smoking which I did for many years, and it is also related to low folate levels. Since I have the MFTHR genetic mutation, I was advised to not take in more than 400 mg total of folate per day.  So rather than berate myself for smoking all those years and for my DNA being what it is, I'm saying 'it is what it is' and getting on with life - being grateful that I have insurance and went for my annual.

I can't begin to say I know what many of you in this group have gone through, both emotionally and physically.  However, my level of understanding is much greater. For each person who has made it through to your 'anniversary', may I say a hearty congratulations!

Comment by Dr. Terence Meaden on June 14, 2015 at 9:08am

You may count on our sympathies. What do you know about the state of your lumbar vertebrae as revealed by MRI scans or X-rays? 

Comment by Daniel W on June 14, 2015 at 9:02am

We had kind of an adventure this week. 

I was at work and developed an insidious, then rapidly progressive flank pain.  It became so severe I had to stop work and go for evaluation.  The pain reminded me very much of the original diagnosis, when I developed an abdominal pain that turned out to be a large tumor, hemorrhaging. 

Normally with a back pain or cramp I ignore it.   This was too much to ignore. In the end, the scan was negative, there was no recurrence seen, and the pain resolved.

I still don't know what it was  Doesn't matter now, it's over and there were no repercussions.  Ning was upset but relieved at the end.

Yesterday I skipped all of my pills.  Just tired of them.  I don't think one day skipped in 2 years will change things in the long run.  I'm normally so diligent, I have a timer on my I-pad to remind me the same time every day.

Now going out to water the vegetables. 

Comment by Joan Denoo on June 7, 2015 at 12:28am

Chris, That is a lovely idea. Even the diabetics among us can have a taste of this pleasure!


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