If you have cancer.

If you had cancer.

If you know someone with cancer.

If you want to talk about cancer.

We won't pray.  We won't blame gods.  We won't give credit to gods.  

We face the diagnosis and know, it is what it is.  

To the extent that we can, we will define our own course.

Members: 23
Latest Activity: Jan 5


Cancer changes lives.

We have to deal with medical profession.

We have to deal with medications.

We have to deal with new discomfort and pain.

We have to create dignity, where there is indignity.

We have to deal with family members, friends, coworkers, and strangers, in a changed way.

We resolve to go forward with strength, resilience, purpose, pride, and integrity.

We define ourselves. Cancer does not define us.

Discussion Forum

Metastasis Visualized

Started by Ruth Anthony-Gardner. Last reply by Daniel W Jun 27, 2016. 3 Replies

This video makes it easier to grasp how metastasis occurs.Continue

Tags: metastasis, cancer spread

Sean Parker to Donate $250,000,000 to Fight Cancer

Started by John Jubinsky. Last reply by Michael Penn Apr 13, 2016. 1 Reply

Billionaire Sean Parker who was the first president of Facebook and a co-founder of Napster will donate $250,000,000 to fund immunotherapy research to fight cancer. This type of therapy fights cancer…Continue

New Hope for Hard-to-Treat Cancers

Started by Qiana-Maieev. Last reply by Ruth Anthony-Gardner Apr 7, 2016. 2 Replies

Ancient Algae Offer New Hope for Hard-to-Treat CancersPosted: 06 Apr 2016 01:57 PM PDTIn one of the oldest life…Continue

A Personal Cancer Blog

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Comment by Grinning Cat on September 22, 2016 at 9:18am

Joan, ((((((hugs!)))))) as you and Cary go through this!

Comment by Daniel W on September 22, 2016 at 8:23am

Joan, it's a tough row to hoe.  Your spirit of always stopping, analysing what the situation is, thinking of the options, and forging ahead, will help you tremendously.  You do have to take care of yourself as much as take care of him.  Cancer is a companion to many of us, an unwelcome and uninvited companion.

About half of cancer patients have cachexia - loss of appetite leading to major weight loss like Cary's.   It's not just mechanical obstruction of the esophagus, although that is an issue too.  Cancers produce substances that deter appetite, including cachexin, interferon, and interleukin-6.

The pureed foods and milkshakes are definitely good choices.  For many years, cancer cachexia has been one of the only medically well accepted legitimate uses for marijuana.  There are also a couple of other medicines, but one is a hormone that really doesn't help muscle mass - megestrol - which adds fat, not muscle.  The other is a derivative of marijuana, but that is expensive and I  am not aware that it is anyh better than marijuana (drobaanol / Marinol).  At local marijuana dispensaries, they should be able to tell you which products are best able to stimulate appetite without getting him high, or at least not too high.   Google search identifies several marijuana dispensaries in Spokane.  

This site is a reasonably good summary of foods and other advice.  One thing is at this point, not to worry about fats being unhealthy.  Fats also carry flavors that stimulate appetite.  So adding butter or tasty oils to foods is a good approach.  The puddings and various types of shakes, are good ideas.

I am with you in spirit, in my thoughts.  You know what I mean by that, nothing supernatural, but with caring and support.

s in Spokane.

Comment by Idaho Spud on September 22, 2016 at 7:58am

Sad news Joan.  Hope they can treat him successfully.  Sorry you have to leave the place you love the best.

Comment by Bertold Brautigan on September 22, 2016 at 7:10am

Joan, I'm so sorry to hear of your son's condition. We found out this past spring that my brother has the same diagnosis.

Comment by Plinius on September 22, 2016 at 4:21am

Shocking news, Joan!

Comment by Joan Denoo on September 22, 2016 at 2:27am

The pureed vegetables is a good idea. I will try the milkshakes and eggnog; hopefully, he will take to them. 

Qiana, I appreciate your support and ideas. I will stay focused. 

Comment by Joan Denoo on September 22, 2016 at 2:07am

I think he knew he had a severe condition. He refused to go to the doctor and told me to stop bugging him. So, I contacted Laura and Larry and asked them to talk to him. They both came at once. Laura asked him why he wouldn't go to the doctor, and he replied that he was taking care of me.  We had the answer for that excuse; I would go to her home for a few weeks. Laura assured Cary if he changed his mind she would take him to the doctor. I was only at Laura's two or three nights and Cary notified Laura he wanted to go to emergency care. I returned with her and am here for the duration.

My task now is to figure out how to get nourishment into him. He lost 40 pounds so quickly, doesn't have an appetite, and it hurts to swallow anything.   

Tonight I fixed a cream sauce over soft noodles, and he ate a little bit of that. He ate a small bowl of mashed potatoes a few nights ago, and an egg omelette yesterday. I'm fixing puddings, and he ate a spoon or so. He doesn't like yogurt of any kind. 

Broccoli, steamed and put thru a food processor was good for a couple of bites.   

I'll call the nutritionist at Cancer Care Northwest and see if she has any ideas. 

I got ingredients for homemade chicken stock and will make that tomorrow. 

Any ideas are most welcome. 

Comment by Joan Denoo on September 21, 2016 at 11:16pm

Cary was diagnosed today with esophageal and lung cancer. 

Comment by Joan Denoo on February 18, 2016 at 10:32pm

Daniel, I look forward to what my next round of appointments will reveal. To be perfectly honest with you, I enjoy my fatigue; it gives me an excuse to read, write, and attend to my mail. When I open the greenhouse, however, I want a full head of steam. 

Comment by Daniel W on February 18, 2016 at 8:14pm
Kelly, welcome to the group!

Josn, so far I have not had to buy on my own, so my oral chemotherapy is still via USA. If I did have to buy it myself, I would look i to the online pharmacies first, and see what they require. I dont know if a trip to a Canadian Dr or pharmacy is required but even with that, the cost would be a fraction of self pay here.

They can check your iron level. They can learn a lot from that.

if the iron level is low despite supplement, you are either not absorbing it or you are losing it. If you take acid - suppressing medication, that interferes with iron absorption. In my case, I am missing most of the stomach and also have to take acid suppresdion for life, so I was given an iron infusion. That made a world of difference.

I have the same symptoms as you. Within a few weeks of the iron infusion, those are at least 50% better. It really helped.

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